Two

Cristian is two years old and he has Tay-Sachs, a rare and fatal disease

that is diagnosed in fewer than 30 children every year in North America.

The genetic disorder robs its victims of an important enzyme, beta

hexosaminidase A, that breaks down cell waste products. As this

waste gradually builds up, the cells become distended with fatty

material. Mental and physical deterioration follows. There is no cure.

Thank you for looking. Rates/Comments highly appreciated.

He is slowly deteriorating and we all are learning and suffering imensely from this incredible situation.

She is a very active intelligent girl who wants attention and love!

emotions come and go and we all wiser for having the opportunity to be part of Cristian's journey!

Dear Family, To know that you cannot help Cristian. It is harder to experience this with a child, because we always concentrate on their future. Our heartfelt feelings go out to you. With love and compassion   V and G

Jorge, I used to babysit a child with Tay Sachs, meeting him when he could only be in a stroller -- lost the ability to walk and had a difficult time holding up his head.  My concern goes to you and your family.  Everybody looks so nice.   I'm happy he has such wonderful people around him

And a great series of pictures as usually! The last one I like most! Best technical quality among other!

Best regards my friend!

PDE

De lujo todas las fotos, muy bonita familia.

Saludos y un fuerte abrazo.

Jorge, muy linda familia unida en el dolor, da ejemplo de fortaleza y amor infinito. Miles de abrazos y espero Dios les ayude con el nene y les de consuelo y paz. Abrazos.